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Arya Tondale

'Ticking' away the stigma of Tic Disorders

Written by: Arya Tondale

Edited by: Maggie Huang



Imagine standing in front of a classroom, your passion for teaching burning bright, only to feel the overwhelming urge to make an unexpected sound or movement—a tic you can’t control, leaving you vulnerable to judgment and misunderstanding. This is the daily reality for many educators living with tic disorders. Tics, sudden, repetitive movements, or vocalizations, are the hallmark of tic disorders such as Tourette Syndrome (TS). While these conditions typically start in childhood, they can continue into adulthood and impact individuals in different fields, such as education. Unfortunately, educators with tic disorders face unique challenges in the workplace because of the stigma and misunderstandings surrounding their condition. Misconceptions about tics can create barriers to professional success and impact mental well-being. Misconceptions about tics can restrict professional success and affect mental well-being, which makes it crucial to raise awareness and provide practical support to help educators with tic disorders thrive.

What are Tic Disorders and what are the stigma surrounding them?

Tic disorders, including Tourette Syndrome, are often misunderstood by the general public, which contributes to the stigmatization of those affected. While TS is commonly associated with coprolalia, or involuntary swearing, this symptom is present in fewer than 10% of individuals with the disorder (Freeman, 2008). While educators with TS may be perceived as unprofessional or disruptive, even though tics are involuntary often worsening under stress or fatigue (Martindale et al., 2024); the exaggerated portrayal of coprolalia (tic-like occurrence) in media has led to widespread misconceptions, which can result in unfair judgments and social distancing.

In educational environments, where classroom management and communication are important, tics can be misunderstood as intentional actions, leading to negative perceptions from students, colleagues, and administrators. According to Malli and Forrester-Jones (2021), individuals with TS frequently report experiencing stigma and discrimination in both educational and employment settings. Educators with tic disorders may feel compelled to hide their condition out of fear of judgment or losing their credibility as professionals.

How does stigma impact educators with Tic Disorders?

The stigma surrounding tic disorders can have profound effects on educators, both professionally and personally. In a school setting, where educators are expected to maintain authority and engage with students, the presence of tics can be misinterpreted as a lack of control or incompetence. This can undermine the educator's authority, making it more difficult to manage the classroom and interact effectively with students. Ludlow et al. (2023) highlight that educators with TS often face heightened scrutiny in these environments, as tics may draw unwanted attention and disrupt the flow of lessons.

Moreover, the psychological toll of stigma can be severe. Educators with TS may experience anxiety about how their tics will be perceived, leading to increased stress, which can exacerbate their symptoms. This creates a toxic cycle in which the fear of stigma worsens tics, and the worsening tics increase the likelihood of stigmatization (Malli & Forrester-Jones, 2021) and this goes on and on. In the long term, this cycle can contribute to burnout, depression, and a diminished sense of self-worth, further reducing the educator’s ability to perform effectively in their role.

How can we support our educators with Tic Disorders?

So, to address the challenges educators face with tic disorders, it is essential to create a supportive and inclusive environment that recognizes the neurological basis of these conditions. Here are some ways we can do just that:

  1. Raising Awareness Through Education: One of the most effective ways to combat stigma is by educating students, staff, and administrators about tic disorders. Schools and universities should implement training programs that explain the nature of TS and other tic disorders, emphasizing that tics are involuntary and often exacerbated by stress. This can help reduce misconceptions and foster a more empathetic and inclusive culture. Additionally, administrators should be trained to recognize the signs of tic disorders and understand how to provide appropriate accommodations.

  2. Providing Accommodations: Educators with tic disorders may benefit from reasonable accommodations and resources that reduce the impact of their tics on their teaching. For example, allowing educators to take short breaks during lessons or adjust their schedules can help minimize stress and reduce the frequency of tics (Martindale et al., 2024). Schools should also ensure that educators feel comfortable requesting accommodations without fear of discrimination.

  3. Encouraging Self-Disclosure in a Supportive Environment: While disclosing a tic disorder can be daunting, especially in a professional setting, it is essential for educators to receive the support they need. Schools and universities should foster a culture where educators feel safe disclosing their conditions without fear of judgment or professional repercussions. By creating an open and supportive environment, institutions can ensure that educators with TS are able to advocate for themselves and access the resources they need to succeed.

  4. Establishing Peer Support Networks: Educators with tic disorders can benefit greatly from peer support networks that provide a space for sharing experiences, strategies for managing tics, and emotional support. Peer support can help reduce feelings of isolation and empower educators to take control of their condition. Schools can facilitate the development of these networks by creating opportunities for educators to connect, either through formal support groups or informal mentorship programs.

  5. Addressing Stigma Directly: Anti-stigma campaigns within schools and professional organizations can help dismantle the negative perceptions associated with tic disorders. By promoting a culture of acceptance and inclusion, schools can reduce the social distancing that often occurs when educators with TS are perceived as "different." As Malli and Forrester-Jones (2021) emphasize, individuals with TS often experience a unique form of stigma that involves judgment and humor at their expense. Schools must take steps to ensure that this form of stigmatization is addressed and that all educators are treated with dignity and respect.

Takeaway

Educators with tic disorders face stigma that can affect their professional standing. Addressing this stigma and fostering acceptance is crucial; it recognizes the worth of every educator. By valuing the unique contributions of those with tic disorders, we enhance our educational environments and teach students the beauty of diversity. Now, imagine a classroom where every teacher feels valued—this is an achievable goal. By creating supportive spaces, we cultivate an educational landscape that celebrates differences and uplifts all voices, reminding us that every educator can inspire and make a meaningful impact.


References:

Freeman, R. D. (2008). Coprophenomena in Tourette syndrome. Developmental medicine and child neurology. https://pubmed.ncbi.nlm.nih.gov/19183216/ 

Ludlow, A. K., Anderson, S., Hedderly, T., Black, K. J., & Conelea, C. A. (2023, March 20). Editorial: Recent advances in understanding tourette syndrome, TIC disorders and functional tics. Frontiers. https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2023.1185489/full 

Martindale, J. M., Ringheanu, V. M., Pring, K. A., Norona, S., Wiseman, K., Strowd, R. E., Chapman, L., Rigdon, J., Rapp, S. R., Storch, E. A., Ip, E., & Mink, J. W. (2024, April 5). Study protocol for measuring stigmatization in persistent tic disorders: Development and validation of the Tourette discrimination-stigmatization scale. Frontiers. https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1381063/ful 

Malli, M.A., Forrester-Jones, R. Stigma and Adults with Tourette’s Syndrome: “Never Laugh at Other People’s Disabilities, Unless they have Tourette’s—Because How Can You Not?”. J Dev Phys Disabil, 34, 871–897 (2022). https://doi.org/10.1007/s10882-021-09829-2

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